The IDEA League supports research that will lead to improved understanding of and treatments for Dravet syndrome and related forms of epilepsy, as well as research that will lead to a cure. We accomplish this through several different avenues.

 

 

As by far the largest gathering of families of children with Dravet syndrome and related conditions ever ‘assembled’, the IDEA League is a rare and precious commodity within the medical community. The information we carry collectively could be the tool needed to unlock the answers to this devastating condition.

 

The IDEA League gathers information through polls and presents this information to physicians and researchers. Data collected from the membership has already influenced the course of research and will only become a more valuable resource as we continue to grow. In addition to polls, the IDEA League is in the process of developing a patient registry which will be a more precise research tool for gathering information critical to the understanding of Dravet syndrome. The IDEA League also serves as a key resource for researchers in need of patients and families to participate in their studies. 

CLICK HERE TO VIEW IDEA LEAGUE POSTER PRESENTATIONS

 

The IDEA League has formed a Collaborative Clinical Research and Comprehensive Care Network which will not only serve to provide optimal care for patients, but will also develop and support research into the basic science, epidemiology and treatment of Dravet syndrome.